Minutes of the European POmpe Consortium (EPOC) Meeting
Benedikt Schoser 1 , Pascal Laforêt 2 , Michelle E. Kruijshaar 3 , Antonio Toscano 4 , Pieter A. van Doorn 5 , Ans T. van der Ploeg 3 , on behalf of the European POmpe Consortium (EPOC)
1 Friedrich-Baur-Institute, Dept. of Neurology, Ludwig-Maximilians-University, Munich, Germany;
2 Paris-Est Neuromuscular center, Pitié-Salpêtrière Hospital, INSERM U974, Université Pierre et Marie Curie, Paris, France;
3 Center for Lysosomal and Metabolic Diseases, Erasmus MC University Medical Center and Dept of Pediatrics, Rotterdam, the Netherlands;
4 Department of Neurosciences, University of Messina, Messina, Italy;
5 Center for Lysosomal and Metabolic Diseases and Dept. of Neurology, Erasmus MC University Medical Center, Rotterdam, the Netherlands
March 27 to 28, 2015, Munich, Germany
In September 2014, twenty-two experts in the field of Pompe disease from nine European countries assembled in Naarden, The Netherlands, for a workshop on Pompe disease, the 208th ENMC International Workshop “Formation of a European Network to develop a European data sharing model and treatment guidelines for Pompe disease” (1). Here, the European POmpe Consortium (EPOC) was funded. To continue our work, the consortium met for the second time, March 27 to 28, 2015 in Munich, Germany.